Thursday, September 16, 2010

Meandering Mind

 So, as I am determined to keep at this...you must meanwhile forgive my mental wanderings. I would have been writing looong ago if it weren't for some of the 'handicaps' I deal with now. Brain fog (quite literally a medical term, also heard it called, appropriately, mudbrain) has  inhibited my natural abilities. My intention in going to Louisiana had been to write like MAD, fueled by my love for the place and the last few years of my interesting & unusual life. Lol. Instead I mostly wandered around in a fog for 2 years...hoping it would just get better already!
 Anyways, I will do my best to be coherent with my thoughts and storytelling! Back to my 1st post.... at this point I have a couple of weeks still to wait on the BIG tests. That'll be the results of the Lyme testing and also neurological issues. So while I'm not QUITE there...I am sooooo much closer than I ever have been. I'm hesitant to really get into details until I pass that point; wasn't going to start this at all until there is proof positive...I'm sure you understand. But at this point I am 99.9% positive that Lyme is the issue. It is much much more common that anyone knows, most people just don't have any idea they have it.
 The waiting is hard...I  feel enormous relief at finally getting to this place, but I have days that I'm scared... what if it IS?  What if it ISN'T?? What if it turns out that I'm just wired wrong? I cannot tell you how many days of my life I've not been able to imagine anyone feeling like I do most of the time. I don't mean this from a place of self pity, I really have never been able to understand what the hell's wrong with me! To wake up and feel GOOD, everyday...to take that for granted, and know that your body will do whatever you need, is more foreign to me than I ever realized. Most of you that have known me for years and years have probably been that person at one point or another to say 'Why are you so sick all the time?' Everyone has. Believe me, it hasn't been from a lack of trying to get to the bottom of it.
 How do you diagnose something that most Doctors don't know of, or believe, exists? I truly believe it is the miracle of the Internet that has changed the face of Lyme...the ability to do OUR OWN research is putting the power back in our hands...thank you Universe!
 Since I first came across  comprehensive info about Lyme in June, I have spent countless hours researching. It's  mind blowing what's out there! There are wonderful resources. If you are interested here's a few:


~http://www.facebook.com/UNDEROURSKIN
This is a phenomenal documentary that I hope changes the way the entire world sees! Check it out =)

www.lyme.org
www.lymenet.org
~ www.lymebytes.blogspot.com






to be continued...


P.S. thanks to everyone for all the LOVE & SUPPORT <3

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